1st ER visit post home

Well tonight was a little scary. While changing Ava tonight, I noticed a large "bump" on her mid-right back area. I called for Bryan to come in there to look. Knowing that this area of concern had not been there previously, I started texting Palliative Care and Neurosurgery from UMC. The "bump" was not a soft bump, nor did it have any redness or heat. You could not move it like a fatty tumor. IT FELT LIKE BONE. Well, like any mother, all I could think about was that she had cracked a rib from all the gagging she does when we suction her. Both of the specialist stated that I should watch the area. Not even an hour later, another spot came up with the same characters as the other, just smaller. So, back to texting the specialist and they responded "go to er now". I told Bryan what they said and off to the ER at DRMC we go. As most of you know, I used to work ER and was not looking forward to going up there on a Saturday night. Ava's immune system is already compromised with all of her diagnosis. I went in and requested they put us in the family conference room and explained the situation. About halfway through the girl at the desk said "don't you work here?" Thank goodness she recognized me, because I was ready to refuse to sit out in the waiting room with people that have the flu and other airborne illnesses. After being "wanded down", we went straight back to the first room. This process was speedy. Shortly after the dr came in, assessed Ava and ordered test. The dr. stated that it was definitely bone that he was feeling, but the xray came back as a bony lesion. Really!? We knew that. They were a little concerned about an area of the lung, but determined that it was related to her heart. They even called and talked with Ava's NICU dr in Jackson. They agreed not to do anything at this time and a follow up appointment for Monday was scheduled. I have to admit that I am not pleased with the unknown bony lesions on my child's back. I am so ready for Monday so that we can  see what Batson has to say. As far as speed, I give DRMC a thumbs up. Good job. Just wish that we knew more. The cardiac concern is now rising, because AG's heart rate has been lower the past couple of days. I marked it up to her growing and of course your rate decreases with age. I am still praying that it is the case. I am so nervous. Tonight I was greeted by some really nice people in the ER that told me that they think and pray for us everyday. How wonderful that felt. In the mist of craziness, we were still reminded that there are good people with the power of prayer. One of the dr's said "I don't know how ya'll are keeping your head straight with everything". Easy........... PRAYER! Please keep AG in your prayers as we head to Batson at 7 am Monday to figure out what is causing these bony lesions on her back. If they get any worse or more before Monday, then we will be "off to see the wizard" before then. For now we are at home and going to try to sleep (at least until her next feeding at 3am).

Phillipians 4:6 
Do not be anxious about anything, but in everything by prayer and supplication with thanksgiving let your request be made known to God.